When Analise Twemlow was diagnosed with Tourette’s Syndrome in 2013, her mother Robyn sprang into action, forming the Tourette’s Association New Zealand – of which she is now executive director – and Camp Twitch, a national gathering for Kiwis with Tourette’s. 11-year-old Analise is also a powerful advocate for the rights of people with Tourette’s, speaking at a Grand Round Lecture at Christchurch Public Hospital and appearing on multiple TV programmes.
Hopes and dreams of parents for your child! We all have them!
The feelings that comes from challenge, and criticism! Hearing from your child at the age of 7 that she wants to die.. heartbreaking! An ADHD diagnosis at age of 7 - medication, no real improvement. Then finally the tourette's syndrome diagnosis... IT IS NOT JUST ABOUT THE SWEARING....
Agh visible, audible pain... of sharing the story of a daughter suffering...
And now we get to meet Analise... WOW
Hearing from Analise that she doesn't have the problem... other people have the problem...
The complexity of tourettes, OCD, ADHD... soooo hard for us to understand... and feel...
We are here, with the absolute privilege of being in Analise's world...
Analise doesn't have a problem with tourettes... others do...
What needs to change in NZ so Analise can be recognised as she needs to be?
This might just be THE MOST POWERFUL story we will be a part of! What can we change? What must we change?
The humour in this most poignant story, raw, beautiful, powerful, MAGICAL story!!!
Standing ovation......................
Hopes and dreams of parents for your child! We all have them!
The feelings that comes from challenge, and criticism! Hearing from your child at the age of 7 that she wants to die.. heartbreaking! An ADHD diagnosis at age of 7 - medication, no real improvement. Then finally the tourette's syndrome diagnosis... IT IS NOT JUST ABOUT THE SWEARING....
Agh visible, audible pain... of sharing the story of a daughter suffering...
And now we get to meet Analise... WOW
Hearing from Analise that she doesn't have the problem... other people have the problem...
The complexity of tourettes, OCD, ADHD... soooo hard for us to understand... and feel...
We are here, with the absolute privilege of being in Analise's world...
Analise doesn't have a problem with tourettes... others do...
What needs to change in NZ so Analise can be recognised as she needs to be?
This might just be THE MOST POWERFUL story we will be a part of! What can we change? What must we change?
The humour in this most poignant story, raw, beautiful, powerful, MAGICAL story!!!
Standing ovation......................
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